A Vision Among Visionaries – My Experience as the Keynote Speaker for NORA 2014!

Cavin Balaster April 11, 2014 14

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My Experience as the Keynote Speaker for NORA 2014!

When I woke from a twelve-day coma less than three years ago, with a devastating diagnosis and without the ability to articulate and express coherent thoughts, the last thing going through the minds of my mother and I were that I would be delivering a keynote speech on the successes and perspectives of a traumatic brain injury survivor. Since finding clarity after my fall, I have wanted to make a positive impact on the lives of other survivors and to bring about positive change to the standard model of neurorehabilitation. I cannot think of a more appropriate group of practitioners and therapists to speak to in order to initiate that feat than the Neuro-Optometric Rehabilitation Association (NORA).

Last Thursday, my mother and I found ourselves on a plane to North Carolina to fulfill a dream that was previously unfathomable. Perhaps this was the beginning of how my mother and I could make a difference? This may be my opportunity to bring our knowledge and experience as a TBI survivor and his mother to an audience of medical practitioners, students, and physical, occupational, speech, and vision therapists. How was I really to cram the past three years into an hour and a half presentation while still making it meaningful and educational for doctors?

“What are you going to do to make a living? How are you going to pay your rent?” My mother had other thoughts on the plane ride over. “It’s hard to hear you express worry” I replied. Here we were, after having written over sixty-thousand words in a blog that was helping others, launched a successful Kickstarter campaign which introduced my story to hundreds of thousands of people around the globe, spent countless hours privately studying and assisting other survivors, and now, finally, a chance at improving the model of neurorehabilitation by bringing our story and my research and perspectives to an entire conference full of professionals dedicated to neurorehabilitation. “After everything, it feels like you still don’t have confidence in me. I just… I just don’t know how to impress you!”

My mother is the most important person in my life. If you know her, have been keeping up with my blog, or have read her recent interview with Robert Nurisio, you know just how difficult and pivotal her role has been in the last three years of my life. As I shared during my speech, and have expressed many times before, I owe her my life; not only for bringing me into this world, but for going above and beyond in assisting and supporting my climb out of the premature grave that I literally fell into.

mommaSmall

I know her genius, which I may not acknowledge enough, is not in her recognition of my accomplishments and the hard work we have done together (she rarely acknowledges either), but in her constant push for improvement. We share this drive. She does not only want me to survive my injuries, she is relentless in her pursuit of giving me a real opportunity to live a meaningful life. She hopes that I am able to help others, and in doing so, that I will be able to thrive. But she’s a mother, and she worries… I don’t think she can help it, and I don’t blame her. Who could after what she has been through.

All of a sudden, the wheels touch down in Raleigh, North Carolina. We make contact with our hotel, board the shuttle, and settle in for the night.

Robert CavinSmallerThe following night, my good friend and vision therapist, Robert Nurisio arrived. Robert has not only shown me incredible support over the years, but he actively blogs about my recovery story and has been instrumental in bringing my story to others. He is responsible for getting my story out to the NORA community, making this all possible. You can see his active blog at VT Works.

FootMassageSmallerWe attended a conference titled, “Eye Spirals,” headed by June Chiang, who often works with traumatic brain injury patients. From Dr. Chiang, we learned about the connection of vision and posture. At the conference, I met with my optometrist Dr. Denise Smith, who practiced a technique on me to encourage good posture through footwork. How many optometrists do you know that will rub your feet?!

By an unbelievable coincidence, Tristen Waters, an old friend who I had grown up with and not seen in years, happened to be recording this event for Backcountry Recording. Though speaker support was not part of his job, Tristen was extremely helpful in making sure the technical aspects of my speech were good to go. Of course, technical difficulties arose, and I found myself in need of a connector that neither of us had. One of my best friends growing up, Scott Hendry, now lived in NC and was going to attend my speech the next day. I made a call to him that night, to see if he could possibly try to find the adapter that I needed the next morning. Scott is one of the most capable people that I know, so when he told me he would see what he could do, I had complete faith in him to do whatever was in his power.

Tristen

Suddenly, it was Saturday morning. I hadn’t been finding the most sleep throughout the trip, but on this particular morning, the morning of my speech, I found myself still preoccupied with technical difficulties. Would I be able to use the software I had prepared and practiced on for months, or would I have to make the transfer and present on an unfamiliar platform? Saving the day as usual, Scott arrived at the last minute with the piece we were looking for. I would have been happy to see him either way, but I was especially happy to see him with connector in hand!

9:45 AM and it’s almost time for me to present. Hundreds of optometrists, therapists, and students fill the room.

Nora Room Smaller

I take a seat in the front by the podium next to my mother, my friend Scott, and my optometrist, Dr. Denise Smith. “Are you nervous?” Denise asked. “Surprisingly, no” I said. “I feel like I’m doing exactly what I’m supposed to be.” Throughout the trip, I’ve reflected on the fact that much of my life has surrounded musical performance. Traveling and playing in front of an audience is something that I’ve not only come to really enjoy, but that I’ve always felt made me feel even more on my game.


“Are you nervous?” Denise asked. “Surprisingly, no” I said. “I feel like I’m doing exactly what I’m supposed to be.”


Dr. Curtis Baxstrom took the podium and began to introduce me to the audience. It was a joy to see him in person. He had been unbelievably helpful, understanding, and supportive throughout the process of preparing for the event. He referenced my blog, my work with other survivors, and my upcoming book. Hearing Curt talk about my traumatic brain injury in 2011, and all of the work I have been doing since, I was brought face-to-face with the reality of this moment. “Okay,” I whispered to Denise, “I’m a little nervous.”

I was invited to the podium to begin my speech. A few technical kinks, a deep breath, a huge smile, and I was overcome by a NORA audience that was warm, receptive, and involved… at that moment, there was nowhere in the world I would rather be.

Cavin Banner

Right away, I wanted to talk about neurorehabilitation and my perspective on potential ways we could improve the current model. But first, I knew that the audience would need to hear some of the details of my brain injury and recovery story to appreciate my perspectives. I acknowledged that even if I were to take the full two hours relaying my story, I still could not accurately convey the full intensity of the experience.

Because I was speaking to mostly optometrists and vision therapists, I then focused on my vision difficulties, specifically the partial paralysis of my fourth cranial nerve, and how this affects my vision. I then expanded to talk about how the integration of different therapies, including nutrition, not only improved my vision, but that combined practices seem to synergistically support the brain.

In order to illustrate certain points about brain plasticity, I was able to use analogies that I have used before in my writing: I likened making neuronal connections like “Building a Bridge,” and how both ‘supplies and work’ are necessary. I talked about the gut/brain axis (Food for Thought) and how I could do an entire presentation on it. I presented my perspectives on human nutrition (Biology, Evolution, and the Brain), and proposed ideas of how we can learn and teach others about these topics.

As I began to close my speech, I referenced a saying I’ve heard throughout my recovery in order to underscore the unique quality of each brain and its corresponding injury: “If you’ve seen one brain injury, you’ve seen ONE brain injury.” I had planned an entire segment about the history of brain plasticity, but I realized that the real experts on brain plasticity are good students, teachers, athletes, musicians, or anyone who understands how they most effectively learn or how to most effectively teach.

My final message was that therapy works synergistically. The result of therapies done together, in culmination with brain-building nutrition, seems to make so much more of an impact than therapies done by themselves. Because of this, I encouraged therapists to work together in order to be more effective. Encouraging therapists to learn outside of their fields, I explained how the practice of one therapy strengthens more than one pathway in the brain. “I want to work with [the neurorehab] community to improve the current model of neurorehabilitation… Let’s go beyond living with brain injury… And let’s HEAL from brain injury.”

And then… the most gracious standing ovation…

  

For most of my adult life, I had been performing music and have been fortunate enough to play a role in so many incredible concerts, venues, and performances, but nothing compared to this moment. I felt weightless, reflecting on where my mother and I started this journey, the years of research, and the grave I dug myself out of with the assistance of loving family, friends, and medical practitioners, much like many of the those in the audience.

StageCirtSmallerI invited my mother and optometrist up to the stage to participate in a brief Q&A session. Dr. Baxstrom then presented me a with a certificate, and before our celebratory dinner, I had the chance to work with Dr. Robert Sanet, O.D., FCOVD. It turns out that Dr. Sanet is a fellow brain injury survivor who also suffered his brain injury in NYC. It was surreal being able learn techniques from a brilliant man who understands brain plasticity on a personal level: in a way that it seems only someone who has recovered from a serious brain condition could relate to.

The next day, Dr. Denise Smith and I received an award to acknowledge our work in “the further advancement of the art and science of Neuro-Optometric Rehabilitation.”

CavinAward

This trip was so many things. It was amazing, inspiring, exhausting… I am so honored to have had the chance to speak to and share my perspectives on the advancement of neurorehabilitation with such an inspiring and welcoming group of professionals. I left Raleigh with so many positive memories, but the fondest of them all might be when my mother looked at me with a smile, shook her head left and right, and said, “Well, Cavin… I’m impressed.”

14 Comments »

  1. Robert Nurisio April 11, 2014 at 10:26 am - Reply

    Beautiful piece, my friend. I am still beyond words.

    • Cavin Balaster April 11, 2014 at 8:48 pm - Reply

      As am I, Robert… Thank you again and again.

  2. Ginger April 11, 2014 at 4:58 pm - Reply

    You are amazing! You and your mom continue to inspire Amy and I. I’d love for you to email me about the foot rubbing, when you get a chance.

    • Cavin Balaster April 11, 2014 at 8:57 pm - Reply

      :) Thanks, Ginger. I don’t know an enormous amount about the foot rubbing except that us bipedal humans use our feet a whole lot. So, it would make sense how important they are to our entire skeletal system. Because vision affects posture (and vice versa), the feet affect the eye too.

      Tell Amy that I send my love!

  3. Bill Perkins April 11, 2014 at 8:35 pm - Reply

    You worked so long and hard to get where you were that day in Raliegh. Congratulations!
    Bill

  4. Mehrnaz Green April 12, 2014 at 11:23 pm - Reply

    Wonderful presentation! You inspired not only other brain injuried survivors, but doctors and therapists who work with tbi patients. Best of luck for the future! I can’t wait to read the book!

  5. Rita April 13, 2014 at 11:42 pm - Reply

    Extraordinary perspective! Brilliant interpretation. The world needs your philosophy & vision! Thank you for provoking renewed motivation.

    • Cavin Balaster April 14, 2014 at 5:33 pm - Reply

      Thank you so much, Rita. It was heartwarming to speak for such a welcoming audience and for a group often referred to as having an ‘invisible disability.’

  6. Aud April 16, 2014 at 1:30 am - Reply

    Way to go Cav, great write up and loved the last video bit, gun shootin and all!

  7. Kim Stipek April 16, 2014 at 5:39 am - Reply

    My son Alex and I both suffered TBIs at age at about age 18. Much like yours, diffuse axonal injuries. We are both doing well. I have my MSN, he will graduate HS this year and go to college. I would especially be interested in your work on vision since Alex is 20/20 in his right eye, with correction but had nerve damage to his left eye. Your story is awesome!

    • Cavin Balaster April 24, 2014 at 3:46 pm - Reply

      Hi, Kim

      Thanks for sharing your story and so glad to hear you’re both doing well! A lot of my recovery has to do with vision therapy. Please feel free to mail me directly if you have questions or browse the blog. :)

      Here’s a post you might be interested in: http://www.cavinbounce.com/double-vision

      Cheers!

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